Monday, June 22, 2015

Good news, everyone!

I know, three updates in 5 days. It's madness! But when there's something to write about, it's more fun to update.

I got an email from our cardiologist, Dr. Sharma, last night and the CT surgeon (the doctor who'll do the catheter) wants to hold off on doing the catheter. Her saturation levels are so good (upper 80's, lower 90's) and haven't gotten any lower in the past three months they're comfortable waiting a few months. Yay!

This does put us back into the limbo state of "wait and see" but we're optimistic that it means her surgery will get pushed back to after her birthday, like was the original plan. She's doing so great these days, there's a part of me that wonders how long she could go like she is without a surgery. I know that surgical options increase her chances of needing a pacemaker (it's something between 50 and 70% currently) and later a heart transplant, but not doing anything would mean poorer quality of life and more illness.

I'm not sure what this will mean for the Synegus shots, either. We have an appointment in July for our regular cardio check up and we haven't gotten an appointment for the doppler yet, but we'll cross those bridges when we come to them. Part of me is relieved we get a little more time before hospital visits and part of me is ready to just do the procedures and just get it all over with (at least for the time being, of course).

Eden's Medical Fund

Just hangin' out with Mom. 

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